The past weeks have been an up and down ride. I have a few good days followed by a few bad days. It's all highs and lows with no middle flats.
I was having a great spell. I was going poop 5-7 times a day (an all time low). The grumbles were reduced. I was having more energy. I hoped the gluten free diet was working its wonders. Then I had my baby blockage and my pouch utopia was up-ended.
For the past week my pouch has been all over the place. I've gone from pure liquid every 1/2 hour to hour to struggling to empty. My rectal cuff became inflamed and sore, and my butt was on fire. I had the anal itch that you just cannot scratch. It was painful to go to the bathroom, and I wanted to avoid it but I couldn't. Also in this time my previous abscess began to ooze again. The cyst on my tailbone has been killing me. Needless to say, I was miserable.
My pouch seems to be turning a corner again. Things are improving, slowly. I don't know what causes these sudden shifts. It is the most frustrating part about the pouch, or chronic pouchitis. I can't say if this is normal because it's all I've ever experienced, but I've had chronic pouchitis before it was even diagnosed. A lot of people pay good money to go to amusement parks to ride roller coasters. I get to ride one for free every day!
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